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Patient Partnership

Home > About MASCC > Patient Partnership

We’re committed to working together with patient partners in our shared mission to improve quality of life for people affected by cancer.

Patient Partner Membership

MASCC offers Patient Partner memberships to eligible individuals who work or volunteer for a recognized cancer patient advocacy organization. To learn more about Patient Partner membership or download the application form, click here.

MASCC/ISOO Annual Meeting

Patient Partners who work or volunteer for a recognized cancer patient advocacy organization are invited to attend our Annual Meeting with free registration.

To qualify for Patient Partner registration, individuals must not qualify for any other MASCC meeting registration category. Patient advocacy work in this context should be of and for the following purposes:

  • Provide input to programs, services, information, and/or support for people affected by cancer, and
  • Have a non-professional membership and do not offer continuing medical education (CME) or scientific programs for professionals.
Learn more about our Annual Meeting

Educational Materials

Presentations

Below you can access presentation slides from selected patient advocacy-focused sessions at recent Annual Meetings:

From One Therapy to the Next: Challenges, Side Effects, and Lessons Learned in Changing Cancer Treatments – Eva Schumacher-Wulf

Enhancing Supportive Cancer Care Patient Experience: The Role of Remote Symptom Monitoring in Side Effects Management – Dr. Omolola Salako

Patient-reported Experiences of Using Electronic Patient-reported Outcome Measures (ePROMS) as Part of Routine Cancer Care – Dr. Thitikorn Nuamek

From Experience to Expertise: Strengthening Consumer Engagement to Be More Than a Conversation – Ms. Vicki Durston

Advocacy-led Co-creation to Advance Quality-of-life Research – Ms. Stacey Tinianov

Common and Uncommon Toxicities: Perspectives and Solutions From Patient Partners – Diane Mapes

The Development and Impact of Patient Advocacy in the UK – Mrs Lesley Turner

Psychosexual Educational Partners Program (PEPP): A Feasibility Study –  Dr Noel Arring

Time to Make Metastatic Breast Cancer Count: Outcomes of a National Roundtable and Consumer-Led Advocacy – Ms Vicki Durston

Integrating A Patient Partner in an Oncology Day Care Unit at AP-HP – Dr Antoine Smulevici

Introduction – MASCC’s Consumer Engagement Committee & Mission – Dr Hannah Wardill

Advocacy is Not Just Women’s Business – How Do We Engage Both Genders? – Mr Alan White

Research Publications

‘Share your views’—international consultation informs a patient engagement strategy for the Multinational Association of Supportive Care in Cancer

Wardill H, Cheung YT et al. Supportive Care in Cancer (2022). 

Get in Touch

For more information about our work with patient partners, please contact mascc.office@mascc.org

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